1 Former Phd Scholar Mgmihs & Associate Professor, Lourdes College Of Nursing, Ernakulam, India.
2* Associate Professor, College Of Nursing, Gulf Medical University, Ajman.
3 Professor, Department Of Pediatrics, Mgm Medical College & Hospital, Mgmihs, India.
Corresponding Author: Dr. Ponchitra Ramanathan, Associate Professor, College Of Nursing, Gulf Medical University, Ajman Uae. Email: ponchitra1976@gmail.com
Introduction: Thalassemia major is a chronic hereditary condition requiring lifelong blood transfusions and continuous medical care, placing a substantial burden on parents who act as primary caregivers. Caregiver burden often leads to physical, emotional, and social strain, while resilience helps caregivers adapt effectively to these challenges. Parent empowerment programmes have emerged as potential interventions to enhance coping abilities, reduce burden, and improve resilience among caregivers. However, limited evidence exists regarding their effectiveness among parents of children with thalassemia major.
Materials and Methods: A quantitative pre-experimental one-group pretest–posttest design was adopted. The study was conducted in thalassemia day care centres in raigad and thane districts, maharashtra. A total of 244 parents (122 mothers and 122 fathers) of children with thalassemia major were selected using purposive sampling. Data were collected using a sociodemographic questionnaire, the zarit burden interview scale, and the connor–davidson resilience scale. Following the pretest, a structured parent empowerment programme of 2 hours was administered. Posttests were conducted at one month and four months after the intervention. Data were analyzed using descriptive and inferential statistics.
Results and Discussion: The findings revealed a significant reduction in caregiver burden among both mothers and fathers following the intervention (p<0.05). The mean burden scores decreased progressively from pretest to posttest 2. Similarly, resilience scores showed a significant increase after the programme (p<0.05). The intervention was effective in shifting caregivers from moderate–severe burden to mild–moderate levels. However, no significant correlation was found between caregiver burden and resilience.
Recommendation: The study recommends implementation of parent empowerment programmes in thalassemia care settings to support caregivers. Multicentric studies are suggested for broader generalization. Establishment of nurse-led counselling services and strengthening healthcare policies to reduce financial burden are also recommended.
Keywords: Thalassemia, Parents, Parent Empowerment Programme, Care Giver Burden, Resilience.
How To Cite This Article: Thomas Ah, Ramanathan P, Seth B. Impact Of Parent Empowerment Programme On The Caregiver Burden And Resilience Among Parents Of Children With Thalassemia. Int J Drug Deliv Technol. 2026;16(16s):910. Doi: 10.25258/ijddt.16.16s.96